"I was never able to eat"

21. January 2012 stand 01: 54 GMT Muhammad's rare condition is assumed that impact on 12 to 15 eighteen-year-old Mohammed Miah children in the UK has never been able to eat.

While many people try less after the excesses of the festive season food, not Muhammad himself drinking tap water.

"The water be boiled or are mineral water has otherwise my stomach do not like." "My stomach is very sensitive."

A serious bowel condition means that he had to rely on artificial feeding since birth.

His meals in liquid form, protein, carbohydrate, fat, water, minerals and vitamins come during the day.

At night, a pump moves more nutrients into his stomach through a special tube.

In the past rely he has on fed intravenously, where the content of the feed to bypass the usual processes of food and digestion.

There was a particularly bad magic a few years ago, remembers Muhammad.

"My gut does no longer work at all." I could get even liquid food or water. It was a case of 'Nil by Mouth'. "That lasted several months."

Nerves failure

Intestinal pseudo-obstruction, is thought Muhammad rare disorder involving around 12 to 15 children in the United Kingdom.

The intestines lose the ability to eat, Chair or air through the gastrointestinal tract.

Doctors in Great Ormond Street Hospital in London, where Muhammad was treated, believe that his special situation is caused by a failure of the nerves within the smooth muscle of the intestines, something known as hollow visceral myopathy.

But he is still a possible positive side to its State.

"Sometimes I think that I'm healthier than other people." "If you think about all those who eat junk food people... at least I get fat."

Has he ever desperate to eat a proper meal?

"We are so good my feeds now, that I have not really hungry, to be honest." And if I'm really sick I'm not feeling hunger more. "It is only normal for me."

Muhammad's doctor, Dr. Nikhil Tharpar, says more research into bowel is required

Despite his courageous stance, the condition had a great influence on Muhammad's life.

Although he is to manage his studies at Newham College and hopes to the University go to next year, he has days when his energy levels are very low and he struggles to get out of bed.

'Knife Edge'

Dr. Nikhil Tharpar, lecturer in Pediatric Gastroenterology at University College London Institute of child health, says, that it urgently necessary, intestinal conditions to understand better.

"We can control only the symptoms at the moment." The treatment is only allowed to survive patients such as Muhammad. We offer no no cure.

"But we want to look at why these developed birth defects in the first place, and some research to grow some of the missing nerves view of stem cells."

Dr. Tharpar recognises that children have a lifelong problem with intestinal pseudo-obstruction that they cannot change.

"These children are very brave, despite everything."

"they have a very poor quality of life, are each week in and outside of the hospital and suffering from severe constipation and blood clots."

"they are life often on knife edge."

Great Ormond Street Hospital in London was set recently the National Centre for diagnosis and treatment of children with the condition.

"Intestinal problems are so common," says Dr. Tharpar.

"Fifty percent of children suffer from at some point bowel problems."

To increase the efforts, awareness and money for bowel disease research, Dr. Tharpar Kilimanjaro is in February of climbing.

After many operations Muhammad energy levels would allow him not to participate in such a demanding challenge.

But he hopes that the hike and no future research have life-changing impact on him.

Source BBC

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